6.4: Individualized Health Plans and Emergency Planning
Health and emergencies
The PLAAFP (Present Levels of Academic Achievement and Functional Performance) section of your child’s IEP should include key health and safety needs. This includes their Individualized Healthcare Plan (IHP), seizure action plan, hydrocephalus symptom awareness plan, or emergency evacuation plan.
Make sure these plans are included in the body of the IEP or 504 plan, not just attached as separate documents. They do not offer legal protections unless they are written into the IEP.
Individualized Healthcare Plans
Every student with medical needs should have an Individualized Healthcare Plan. This outlines their medical conditions, daily medications, emergency procedures, seizure rescue medications, and other supports. If your child does not already have an IHP, the team should still create a basic emergency plan.
Emergency Evacuation Plans
Some students may need extra support during fire drills or emergencies. For example, they may:
- Be sensitive to loud alarms or flashing lights
- Have mobility challenges in crowded hallways
- Need access to medications that could be forgotten during evacuation
The school team should work with you to plan for all possible scenarios.
Seizure First Aid Training
Teachers, aides, bus drivers, and other school staff must be trained in basic seizure first aid. In middle and high school, students can also benefit from learning how to support a peer who has seizures.
The Epilepsy Foundation offers free and low-cost programs, including:
- Seizure First Aid Certification for school staff
- Epilepsy and Seizure Safe Classroom Program for educators and students
These trainings help build safety, awareness, and inclusion for students with epilepsy and related conditions.
Other Medical Considerations
Each student’s medical needs will be unique. The school nurse and medical team can guide which plans are needed.
Common examples include:
- Seizure Action Plan (SAP)
- Homebound instruction after surgery or hospitalization
- Emergency care plan for signs of stroke or transient ischemic attack (TIA)
- Headache management plan (including what medications to take and when)
- Activity restrictions (such as no contact sports)
Prolonged Absences and Educational Rights
If your child misses school for medical reasons—like surgery, treatment, or recovery—they still have the right to a free and appropriate public education (FAPE). The IEP or 504 Plan should clearly explain how your child will keep learning while they’re away from school.
Homebound or Hospital Instruction
Students who will be out for a significant period may qualify for instruction at home or in the hospital. This can be temporary (through general education) or part of an IEP (if your child qualifies for special education services). The plan should include how and when instruction will be delivered and by whom.
Educational Plans and Medical Absences
Your child may qualify for:
- An IEP (Individualized Education Program), which includes learning goals, services, and supports tailored to your child’s needs.
- A 504 Plan, which ensures your child can access school and receive accommodations (like flexible deadlines or online learning).
Medical absences must be excused if you provide a doctor’s letter or documentation. Schools cannot mark your child truant or penalize them for missing school due to a medical condition.
Parent Action Steps
If your child does not yet have an IEP or 504 Plan:
- Submit a written request for a special education evaluation based on medical and developmental needs.
- Ask the team to create a plan that includes homebound services, accommodations, and supports during and after the absence.
- Keep in touch with the school team and nurse, and update them on your child’s health and recovery timeline.
Individualized Health Plans and Emergency Support
Even during extended absences, your child should still have an Individualized Healthcare Plan (IHP) or emergency plan that addresses how medical needs will be handled if they attend school part-time or transition back. These plans can include:
- A seizure action plan
- Medication schedule or rescue meds
- Emergency contact information
- Transition plan for returning to school
Remember, plans like IHPs or emergency instructions only have legal protections when they are written into the IEP or 504 Plan.
Learn more
- Advocating for Your Medically Complex Child in School (Audrey Vernick, Pediatric Epilepsy Surgery Alliance)
- Care of Students with Disabilities in Schools: A Team Approach (Kathleen Johnson, the American Nurses Association)
- Developing an Individualized Health Care Plan (Kennedy Krieger Insitute)
- Individual Health Care Plans and Emergency Information Forms (PACER Center)
- Individualized Health Plan (IHP) in an IEP (Undivided)
- Legal Rights of Children with Epilepsy in School & Child Care: An Advocate's Manual (©Epilepsy Foundation 2011)
- MODEL SECTION 504 PLAN FOR A STUDENT WITH EPILEPSY (Epilepsy Foundation)
- Rescue Medicine for Epilepsy in Education Settings (Hartman 2016, American Academy of Pediatrics)
- School Nursing Evidence-Based Clinical Practice Guideline: Students with Seizures and Epilepsy – create a free account to access this and many other trainings. (National Association of School Nurses)
- SCHOOL SEIZURE ACTION PLAN (Child Neurology Foundation)
- Seizure Action Plans (Epilepsy Foundation)
- Your local Epilepsy Foundation chapter can come in and train your child's school team on seizure first aid. They also have online training for school personnel and videos on seizure first aid. However, not all students need the same seizure action plan. The plan should be designed based on your child's unique needs and included in the IEP.
- Seizure action plans and emergency action plans (Pediatric Epilepsy Surgery Alliance)
- Seizure Rescue Medications (Epilepsy Foundation)
- Strengthen & Enhance Epilepsy Knowledge (SEEK) Training (American Academy of Pediatrics, National Coordinating Center for Epilepsy)
- Supporting Students with Epilepsy: A Toolkit for School Nurses (National Association of School Nurses)
- Use of Individualized Healthcare Plans to Support School Health Services, Position Statement (National Association of School Nurses)
- Virtual Backpack – Seizure Action Plans (Seizure Action Plan Coalition)