The C.A.R.E Binder

This phenomenal resource is for families Caring for Adults with a Rare Epilepsy.

This step-by-step guide is a rich, detailed resource for parents and caregivers on the journey of supporting their adults with epilepsy.

The C.A.R.E. Binder covers:

• Transitioning from pediatric to adult medical care.
• Long‐term care in adulthood and beyond.
• Planning for your end of life so that your loved one continues to be cared for.

VIPrareCARE.com and the C.A.R.E. Binder were proudly developed in collaboration with the Dravet Syndrome Foundation, Lennox-Gastaut Syndrome Foundation, TSC Alliance and other organizations who support families like yours and was made possible through UCB funding and partnership. We'd love to hear your feedback on the C.A.R.E. Binder. Please click here to share your insights.